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This is much sharper than an ultrasound would be. | זה הרבה יותר חד מאשר אולטרהסונד. מה שראינו שבכלייה ההיא | en-he |
What we saw in that kidney was that big blob there. | foi aquela mancha grande ali. E, na realidade, tinham duas. | en-pt-br |
There were actually two of these: one was growing out the front and had already erupted and latched onto the bowel. | Один вырос спереди и уже прорвался, добравшись до кишки. | en-ru |
One was growing out the back and it attached to the psoas muscle, which is a big muscle in the back that I'd never heard of, but all of a sudden I cared about it. | 还有一个长在后端，和比目鱼肌连在一块。 这是一个我从没听说过的在背部的一大块肌肉。 但突然之间我开始关心它了。 | en-zh-cn |
(Laughter) I went home. | Я пошел домой. | en-ru |
Now, I've been Googling -- I've been online since 1989, on CompuServe. | 现在我一直在用Google搜索，自1989年其就用Compuserv(早期美国网络提供商)上网。 | en-zh-cn |
I went home, and I know you can't read the details here; that's not important. | הלכתי הביתה, ואני יודע שאתם לא יכולים לקרוא את הפרטים כאן; זה לא חשוב. הנקודה שלי היא שגלשתי לאתר רפואי מכובד, | en-he |
My point is, I went to a respected medical website, WebMD, because I know how to filter out junk. | medische website ging, WebMD, omdat ik weet hoe ik junk moet uitfilteren. | en-nl |
I also found my wife online. | Ik heb mijn vrouw ook online gevonden. | en-nl |
Before I met her, I went through some suboptimal search results. | قبل أن ألتقي بها ، ذهبت من خلال بعض نتائج البحث دون المستوى الأمثل . | en-ar |
(Laughter) So I looked for quality information. | (смях) Така че търсех качествена информация. | en-bg |
There's so much about trust -- what sources of information can we trust? | Доверието е толкова важно - на кои източници на информация можем да се доверим? | en-bg |
Where does my body end and an invader start? | Dove finisce il mio corpo e comincio a invadere lo spazio altrui? | en-it |
A cancer, a tumor, is something you grow out of your own tissue. | والسرطان ، ورم ، شيء ينمو من الأنسجة الخاصة بك . | en-ar |
How does that happen? | מה קורה? | en-he |
Where does medical ability end and start? | Где границы возможностей медицины? | en-ru |
Well, so what I read on WebMD: "The prognosis is poor for progressing renal cell cancer. | 所以我從WebMD讀到 病情結果預測不好 對進行中的腎組織癌症來說 | en-zh-tw |
Almost all patients are incurable." | Casi todos los casos son incurables". | en-es |
I've been online long enough to know if I don't like the first results I get, I go look for more. | Ich war lange genug online um zu wissen, dass ich, wenn ich das erste Resultat nicht mögen würde, einfach nach weiteren suchen musste. | en-de |
And what I found on other websites was, even by the third page of Google results: "Outlook is bleak." | Ono što sam našao bilo je na drugim stranicama, čak na trećoj stranici rezultata na Googleu: "Izgledi su slabi." | en-hr |
"Prognosis is grim." | "예후가 암울함" 이였습니다. | en-ko |
And I'm thinking, "What the heck?" | Y yo pensé, "Qué caray" No me sentía enfermo, en absoluto. | en-es |
I didn't feel sick at all. | Memang saya merasa lelah di waktu malam, | en-id |
I mean, I'd been getting tired in the evening, but I was 56 years old, you know? | aber ich war 56 Jahre alt. Ich hatte langsam an Gewicht verloren, | en-de |
I was slowly losing weight, but for me, that was what the doctor told me to do. | 但对我来说，这正是医生告诉我要去做的 真不知道这是一个什么事儿。 | en-zh-cn |
It was really something. | وهذا هو المخطط لسرطان الكلى في مرحلته الرابعة | en-ar |
And this is the diagram of stage 4 kidney cancer from the drug I eventually got. | illustrato sul medicinale che assunsi in seguito. | en-it |
Totally by coincidence, there's that thing in my lung. | Totalmente por coincidência, há aquela coisa no meu pulmão. | en-pt |
In the left femur, the left thigh bone, there's another one. | Di paha sebelah kiri, tulang paha sebelah kiri, ada satu lagi. | en-id |
I had one. My leg eventually snapped. | 제 다리는 결국 부러졌습니다. 저는 쓰러졌고, 다리는 결국 부러졌습니다. | en-ko |
There's one in the skull, and then for good measure, I had these other tumors, including, by the time my treatment started, one was growing out of my tongue. | Er is er nog een in de schedel, en om de puntjes op de i te zetten, ik had ook nog die andere tumoren - met inbegrip van, tegen de tijd dat mijn behandeling begon, een op mijn tong. | en-nl |
I had kidney cancer growing out of my tongue. | Me apareció un cáncer de riñón, en la lengua. | en-es |
And what I read was that my median survival was 24 weeks. | ve okudugum kadarıyla median yaşam süresi 24 haftaydı. | en-tr |
This was bad. | Brutta notizia. Ero con un piede nella fossa. | en-it |
I thought, "What's my mother's face going to look like on the day of my funeral?" | Я подумал: "Какое будет лицо у моей матери в день моих похорон?" | en-ru |
I had to sit down with my daughter and say, "Here's the situation." | Musel jsem se posadit s dcerou a říct jí: "Podívej, má se to takhle." | en-cs |
Her boyfriend was with her. | O namorado dela estava junto. | en-pt-br |
I said, "I don't want you guys to get married prematurely, just so you can do it while Dad's still alive." | Jag sa, "Jag vill inte att ni gifter er för tidigt bara för att din pappa fortfarande skall vara i livet." | en-sv |
It's really serious. | Det var riktigt allvarligt. Om ni undrar varför patienter är motiverade och vill hjälpa till, | en-sv |
If you wonder why patients are motivated and want to help, think about this. | bunu düşünün. | en-tr |
Well, my doctor prescribed a patient community, ACOR.org, a network of cancer patients, of all amazing things. | Мой доктор прописал мне сообщество пациентов, Acor.org, сеть раковых больных, удивительное место. | en-ru |
Very quickly they told me, "Kidney cancer is an uncommon disease. | מהר מאד הם אמרו לי, "סרטן הכליות הוא מחלה לא שכיחה. | en-he |
Get yourself to a specialist center. | Gehen Sie zu einem Spezialisten-Zentrum. | en-de |
There is no cure, but there's something that sometimes works -- it usually doesn't -- called high-dosage interleukin. | Nie ma lekarstwa, ale jest coś co czasami działa - choć zazwyczaj nie - nazywa się wysokie dawki interleukiny. | en-pl |
Most hospitals don't offer it, so they won't even tell you it exists. | Większość szpitali jej nie oferuje, więc nawet nie mówią ci, że istnieje. | en-pl |
Don't let them give you anything else first. | I nie pozwól im podać sobie niczego innego. | en-pl |
And by the way, here are four doctors in your part of the United States who offer it, and their phone numbers." | Et d'ailleurs, voici 4 médecins près de chez vous qui le proposent et leurs numéros de téléphone. Etonnant, non? | en-fr |
How amazing is that? | Wie unglaublich ist das? | en-de |
(Applause) Here's the thing: Here we are, four years later -- you can't find a website that gives patients that information. | 现在的情况是。 我们在这里，四年以后， 你找不到一个网站告诉你这个信息。 | en-zh-cn |
Government-approved, American Cancer Society, but patients know what patients want to know. | Vlada ga je odobrila kao i Američko društvo za karcinome, no pacijenti saznaju ono što žele. | en-hr |
It's the power of patient networks. | Đó là sức mạnh của mạng lưới các bệnh nhân. | en-vi |
This amazing substance -- again, I mentioned: Where does my body end? | Deze verbazingwekkende substantie - ik zei: waar houdt mijn lichaam op? | en-nl |
My oncologist and I talk a lot these days because I try to keep my talks technically accurate. | 這些日子以來，我的腫瘤學家和我談了很多。 因為我試著讓我的演講技術上是正確的 他說，你知道吧，免疫系統 | en-zh-tw |
And he said, "You know, the immune system is good at detecting invaders, bacteria coming from outside, but when it's your own tissue that you've grown, it's a whole different thing." | در شناسایی مهاجمان خوب عمل میکنه-- در شناسایی باکتریهایی که از بیرون میان-- اما وفتی این از بافتهای خودت رشد کرده باشه، چیز کاملا متفاوتی است." در واقع من به طرف تمرینات ذهنی رفتم، | en-fa |
And I went through a mental exercise, actually, because I started a patient support community of my own on a website, and one of my friends -- one of my relatives, actually -- said, "Look, Dave, who grew this thing? | e ho dato inizio a una comunità di supporto per pazienti su un mio sito, e uno dei miei amici, uno dei miei parenti in realtà, mi disse, "Ascolta Dave, chi ha sviluppato questa cosa? | en-it |
Are you going to set yourself up as mentally attacking yourself?" | Σκοπεύεις να να προετοιμαστείς διανοητικά να επιτεθείς στον εαυτό σου;» | en-el |
So we went into it. | Γι' αυτό και συνεχίσαμε. | en-el |
The story of how all that happened is in the book. | I opowieść o tym, jak to wszystko się dzieje jest w tej książce. | en-pl |
Anyway, this is the way the numbers unfolded. | בכל מקרה, זאת הדרך שבה המספרים מתגלים. | en-he |
Me being me, I put the numbers from my hospital's website, for my tumor sizes, into a spreadsheet. | من خودم بودم ، من اعداد رو در مقابل وب سایت بیمارستانم گذاشتم بر اساس اندازه تومور هام اونها رو در یه صفحه گسترده قرار دادم. در باره اعداد نگران نباشید. | en-fa |
Don't worry about the numbers. | 저기 보이는 게 면역 계입니다. | en-ko |
Amazing thing, those two yellow lines are where I got the two doses of interleukin two months apart. | Nevjerojatna stvar, dvije žute linije označavaju kada sam dobio doze interleukina u razmaku od dva mjeseca. | en-hr |
And look at how the tumor sizes plummeted in between. | Spójrzcie jak rozmiar guza gwałtownie się zmniejszył pomiędzy. | en-pl |
Just incredible. | Просто невероятно. | en-bg |
Who knows what we'll be able to do when we learn to make more use of it? | Wer weiss, was wir alles erreichen werden wenn wir lernen, die Möglichkeiten intensiver zu nutzen. | en-de |
The punch line is that a year and a half later, I was there when this magnificent young woman, my daughter, got married. | Nejlepší bylo, že o rok a půl později jsem mohl přihlížet tomu, když se tato úžasná žena, má dcera vdávala. Přihlížet tomu, jak schází po schodech, | en-cs |
And when she came down those steps, and it was just her and me for that moment, I was so glad that she didn't have to say to her mother, "I wish Dad could have been here." | och hon och jag var tillsammans, var jag så lycklig över att hon inte behövde säga till sin mamma, "Jag önskar att pappa hade varit här." | en-sv |
And this is what we're doing when we make health care better. | Και αυτό συμβαίνει όταν κάνουμε την ιατρική περίθαλψη καλύτερη. | en-el |
Now, I want to talk briefly about a couple of other patients who are doing everything in their power to improve health care. | Сега искам да поговоря накратко за няколко други пациента, които правят всичко възможно да подобрят здравеопазването. | en-bg |
This is Regina Holliday, a painter in Washington DC, whose husband died of kidney cancer a year after my disease. | Đây là Regina Holliday, một họa sĩ ở Washington D.C, chồng bà chết vì ung thư thận một năm sau khi tôi mắc bệnh. | en-vi |
She's painting, here, a mural of his horrible final weeks in the hospital. | на ужасните му последни седмици в болницата. | en-bg |
One of the things that she discovered was that her husband's medical record in this paper folder was just disorganized. | Jedną z rzeczy, które odkryła było to, że dokumentacja medyczna jej męża w tej papierowej teczce była bardzo niezorganizowana. I pomyślała: "Wiecie, skoro mam informacje o składnikach odżywczych | en-pl |
And she thought, "You know, if I have a nutrition facts label on the side of a cereal box, why can't there be something that simple telling every new nurse who comes on duty, every new doctor, the basics about my husband's condition?" | pe o parte a cutiei de cereale, de ce n-ar putea fi ceva atât de simplu care să spună fiecărei asistente care vine la serviciu, fiecărui doctor nou, lucrurile de bază despre boala soţului meu?" Aşa că a făcut această pictură murală a aspectelor medicale | en-ro |
So she painted this medical facts mural with a nutrition label, something like that, in a diagram of him. | Vì vậy bà đã vẽ nhãn thông tin dinh dưỡng những thứ kiểu như thế, trong sơ đồ của chồng bà. | en-vi |
She studied health care like me. | Hon betraktade sjukvården liksom jag. | en-sv |
She came to realize there were a lot of people who'd written patient-advocate books that you just don't hear about at medical conferences. | أدركت أن هناك الكثير من الناس الذين قد كتبوا كتب تساعد المرضى لا يمكن أن تسمعوا عنها في المؤتمرات الطبية . | en-ar |
Patients are such an underutilized resource. | Patienten sind so unterbenutzte Ressourcen. | en-de |
Well, as it said in my introduction, I've gotten somewhat known for saying that patients should have access to their data. | Nun, wie es in meiner Einleitung heisst, Ich habe eine gewisse Bekanntheit erreicht durch die Aussage, Patienten sollten Zugang zu Ihren Daten haben. Und ich sagte übrigens an einer Konferenz vor einigen Jahren: | en-de |
I actually said at one conference a couple of years ago, "Give me my damn data, because you people can't be trusted to keep it clean." | “Me dá os meus malditos dados, porque não confiamos que vocês os manterão limpos.” | en-pt-br |
And here, she has our "damned" data -- it's a pun -- which is starting to break out, starting to break through -- the water symbolizes our data. | 听她有我们该死的数据。 这有一个寓意（指上面提到的壁画） 它开始涌出，开始突破。 水就象征着我们的数据。 | en-zh-cn |
And in fact, I want to do a little something improvisational for you. | ואכן, אני רוצה לעשות אלתור קטן בשבילכם כאן. | en-he |
There's a guy on Twitter that I know, a health IT guy outside Boston, and he wrote the e-Patient rap. | יש בחור בטוויטר שאני מכיר, בחור מערכות מידע המערכת הבריאות מחוץ לבוסטון, והוא כתב את ראפ החולה המתוקשב. | en-he |
And it goes like this. | E ela diz o seguinte: | en-pt |
(Laughter) (Beatboxing) (Rapping) Gimme my damn data I wanna be an e-Patient just like Dave Gimme my damn data, 'cause it's my life to save (Normal voice) Now, I'm not going to go any further -- (Applause) (Cheering) Well, thank you. That shot the timing. | ♫Dajcie mi te cholerne dane♫ ♫chcę być e-Pacjentem tak jak Dave♫ ♫Dajcie mi te dane, bo to ocali mnie♫ Nie będę brnął w to dalej. (Brawa) Wielkie dzięki. Skróciliście mój czas. | en-pl |
(Laughter) Think about the possibility. | (掌聲) 想想這個可能性 | en-zh-tw |
Why is it that iPhones and iPads advance far faster than the health tools that are available to you to help take care of your family? | защо АйФоните и АйПадовете се развиват толкова по-бързо от здравните инструменти, който са достъпни и помагат да се погрижите за семейството си? | en-bg |
Here's a website, VisibleBody.com, that I stumbled across. | これは VisibleBody.comという 私がたまたま見つけたサイトです | en-ja |
And I thought, "You know, I wonder what my psoas muscle is?" | Řekl jsem si: "Jak vlastně vypadá můj lýtkový sval?" | en-cs |
So you can click on things and remove it. | Bạn có thể nhấn vào những thứ này và loại bỏ nó. | en-vi |
And I saw, "Aha! That's the kidney and the psoas muscle." | Και είδα, «Α! αυτό είναι το νεφρό και ο μυς soleus». | en-el |
I was rotating it in 3D and saying, "I understand now." | И я крутил это в 3D со словами: "Теперь я понимаю." | en-ru |
And then I realized it reminded me of Google Earth, where you can fly to any address. | Dan situs ini mengingatkan saya pada Google Earth, yang dapat menerbangkan Anda ke manapun. | en-id |
And I thought, "Why not take this and connect it to my digital scan data and have Google Earth for my body?" | ואני חשבתי, "למה לא לקחת את זה ולחבר זאת לסריקת מידע הדיגיטלית שלי ולעשות Google Earth לגופי?" | en-he |
What did Google come out with this year? | Welche Neuigkeiten brachte Google in diesem Jahr heraus? | en-de |
Now there's Google Body browser. | الآن هناك متصفح جوجل الجسدى الثلاثى الأبعاد . | en-ar |
But you see, it's still generic. | Mas como vêem, ainda é genérico. | en-pt |
It's not my data. | 私のデータは取り込めません | en-ja |
But if we can get that data out from behind the dam so software innovators can pounce on it the way software innovators like to do, who knows what we'll be able to come up with. | でも 私たちが各自の医療データに アクセスできるようになり ソフト開発者に渡せば 開発が好きな彼らなら きっと素晴らしいものを作るでしょう | en-ja |
One final story. | Une dernière histore : Voici Kelly Young, | en-fr |
This is Kelly Young, a rheumatoid arthritis patient from Florida. | 플로리다에 사는 류마티즘성 관절염 환자입니다. | en-ko |
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