| { |
| "nodes": [ |
| { |
| "name": "study_registration_metadata", |
| "description": "Export of the dbGaP FHIR API study registration metadata which provides study-level metadata for a specific PHS ID.", |
| "links": [], |
| "properties": [ |
| { |
| "name": "Accession", |
| "description": "The accession number of the dbGaP study, which is the phs number prefixed with 'phs' and including the version, consent group, and participant set numbers (e.g., phs004055.v1.p1.c1).", |
| "type": "string" |
| }, |
| { |
| "name": "c", |
| "description": "The c number denotes the consent group, which contains data from a set of participants who have all signed the same consent agreement. A study with multiple consent groups will have multiple consent group numbers (e.g., .c1, .c2). Data delivered for a single consent group will have the same Data Use Limitations (DULs).", |
| "type": "string" |
| }, |
| { |
| "name": "ConsentGroup", |
| "description": "Text code that indicates data use restrictions (e.g., GRU=general research, HMB=health/biomedical only, DS-X=disease-specific, NPU=non-profit use, IRB=requires ethics approval) per Data Use Ontology (DUO).", |
| "type": "string" |
| }, |
| { |
| "name:": "p", |
| "description": "The p number, also known as the 'participant set version', identifies a specific group of participants within a study. The number is incremented when the consent status of subjects in an existing study set changes, but not when new subjects are simply added.", |
| "type": "string" |
| }, |
| { |
| "name:": "phs", |
| "description": "The phs ID of the dbGaP study; phs stands for Phenotype Study and indicates that the accession number is for a dbGaP study.", |
| "type": "string" |
| }, |
| { |
| "name:": "v", |
| "description": "The v number is the study's version number. This number is incremented when changes are made to existing data or new data is added to a study.", |
| "type": "string" |
| }, |
| { |
| "name:": "Title", |
| "description": "The title of the dbGaP study.", |
| "type": "string" |
| }, |
| { |
| "name": "handle", |
| "description": "The human-readable ID or handle of the dbGaP study.", |
| "type": "string" |
| }, |
| { |
| "name": "Description", |
| "description": "The description of the dbGaP study.", |
| "type": "string" |
| } |
| ] |
| }, |
| { |
| "name": "telemetry_report", |
| "description": "Export of the dbGaP FHIR API subject telemetry report, which provides subject-level metadata for a specific PHS ID.", |
| "links": [ |
| "study_registration_metadata" |
| ], |
| "properties": [ |
| { |
| "name": "consent_code", |
| "description": "The consent code assigned to a subject.", |
| "type": "string" |
| }, |
| { |
| "name": "dbgap_subject_id", |
| "description": "The unique identifier for a subject in the context of a dbGaP study.", |
| "type": "string" |
| }, |
| { |
| "name": "submitted_subject_id", |
| "description": "The unique identifier for a subject that was originally submitted by the data contributor.", |
| "type": "string" |
| } |
| ] |
| }, |
| { |
| "name": "derive13", |
| "description": "Data from version 1 of the main study of the Atherosclerosis Risk in Communities (ARIC) study within the BioLINCC repository.", |
| "links": [ |
| "telemetry_report" |
| ], |
| "properties": [ |
| { |
| "name": "ID_C", |
| "description": "The unique identifier for subjects in the ARIC (Atherosclerosis Risk in Communities) study dataset within the BioLINCC repository. The submitted_subject_id in the subject telemetry report.", |
| "type": "string" |
| }, |
| { |
| "name": "GENDER", |
| "description": "SEX (from FTRA22)", |
| "type": "string" |
| }, |
| { |
| "name": "RACEGRP", |
| "description": "RACE (from FTRA23)", |
| "type": "string" |
| }, |
| { |
| "name": "BMI01", |
| "description": "BODY MASS INDEX IN KG/(M*M)", |
| "type": "number" |
| }, |
| { |
| "name": "CURSMK01", |
| "description": "Current cigarette smoker", |
| "type": "number" |
| }, |
| { |
| "name": "EVRSMK01", |
| "description": "Ever smoked cigarettes", |
| "type": "number" |
| }, |
| { |
| "name": "FORSMK01", |
| "description": "Former cigarette smoker", |
| "type": "string" |
| }, |
| { |
| "name": "CIGT01", |
| "description": "CIGARETTE SMOKING STATUS", |
| "type": "number" |
| }, |
| { |
| "name": "PIPE01", |
| "description": "PIPE SMOKING STATUS", |
| "type": "number" |
| }, |
| { |
| "name": "CIGR01", |
| "description": "CIGAR/CIGARILLO SMOKING STATUS", |
| "type": "number" |
| }, |
| { |
| "name": "CIGTYR01", |
| "description": "CIGARETTE YEARS OF SMOKING", |
| "type": "number" |
| }, |
| { |
| "name": "PIPEYR01", |
| "description": "PIPE YEARS OF SMOKING", |
| "type": "number" |
| }, |
| { |
| "name": "CIGRYR01", |
| "description": "CIGAR/CIGARILLO YEARS OF SMOKING", |
| "type": "number" |
| } |
| ] |
| }, |
| { |
| "name": "dmri_ia1", |
| "description": "Data from an ancillary study Diffusion Magnetic Resonance Imaging-1 (dmri-ia1) of the Atherosclerosis Risk in Communities (ARIC) study within the BioLINCC repository.", |
| "links": [ |
| "telemetry_report" |
| ], |
| "properties": [ |
| { |
| "name": "ID_C", |
| "description": "The unique identifier for subjects in the ARIC (Atherosclerosis Risk in Communities) study dataset within the BioLINCC repository. The submitted_subject_id in the subject telemetry report.", |
| "type": "string" |
| }, |
| { |
| "name": "CURAGE16", |
| "description": "Age at MRI visit", |
| "type": "number" |
| }, |
| { |
| "name": "HEIGHT16", |
| "description": "Height (cm)", |
| "type": "number" |
| }, |
| { |
| "name": "WEIGHT16", |
| "description": "Weight (lbs)", |
| "type": "number" |
| }, |
| { |
| "name": "BMI16", |
| "description": "BMI (kg/m2)", |
| "type": "number" |
| }, |
| { |
| "name": "SBP", |
| "description": "Systolic blood pressure", |
| "type": "number" |
| }, |
| { |
| "name": "DBP", |
| "description": "Diastolic blood pressure", |
| "type": "number" |
| }, |
| { |
| "name": "HIBPMED", |
| "description": "Hypertension medication use", |
| "type": "string" |
| }, |
| { |
| "name": "STROKE16", |
| "description": "Stroke", |
| "type": "string" |
| }, |
| { |
| "name": "CURSMK16", |
| "description": "Current cigarette smoker", |
| "type": "string" |
| }, |
| { |
| "name": "EVRSMK16", |
| "description": "Ever smoked cigarettes", |
| "type": "string" |
| }, |
| { |
| "name": "FORSMK16", |
| "description": "Former cigarette smoker", |
| "type": "string" |
| } |
| ] |
| } |
| ] |
| } |
|
|
